Adela Gomez has launched a ‘crowdfunding’ campaign to investigate the rare disease she suffers from, Guillain-Barré syndrome, an autoimmune disease in which antibodies attack nerves. The aim of the campaign was to raise 5,000 euros for the Neuromuscular Diseases Research Group of the Sant Pau Research Institute, which specialises in Guillain-Barré, in order to contribute to its research and the development of treatments; although the figure has already been exceeded, reaching a total of 11,686 euros.
Guillain-Barré syndrome is a progressive paralysis, which evolves over several weeks. Recovery, which can take months, requires a long hospital stay. In fact, the young woman has been admitted to Sant Pau for one month under the supervision of Dr. Luis Querol, neurologist at the Neuromuscular Unit of the Sant Pau Neurology Service and researcher at the Neuromuscular Diseases Research Group of the Sant Pau Research Institute.
In total, there are 400 cases per year in Spain with this syndrome, so it is considered a rare disease. According to the experts, most cases recover completely, but there is a high percentage of affected people in which the sequelae are permanent or can even reach, in a few cases, death.
